Kenny Update--March 4th

Kenny was occasionally spiking a fever yesterday. Last night after another spike to 103 they put him on a 2nd antibiotic. This morning his temperature has not hit 101. His white cell count is on the upswing and there will be another blood draw tonight. He has had about 6 hours today where he has been awake and has spent about 3 hours sitting in a chair. All in all he is getting better although it has been a little slow. He has a couple of mouth sores that the staff has been treating and they are improved. The last couple of days he has had some discomfort in his chest. We thought that it was his central line that was bothering him. It was determined that it is acid reflux – a side effect from the chemo. So he is on another med to help with it. The boy is a walking pharmacy. His appetite is much better today but has a long way to go. He has not had any additional seizures since earlier this week.
Both Kenny and I slept as well as could be expected. We are praying for a repeat tonight. Sleeping at a hospital is really a series of naps. We actually had a 3 hour stretch where there were no nurses, no IV alarms going off and we are far enough back in the unit that we did not hear the door to the unit opening and closing.
We are re-learning living at the hospital. It looks like we are going to be here for at least a couple more days. My face is starting to be recognized by the supporting staff. I walked into the cafeteria today; the cashier looked at me and said “...we are out of chocolate milk today”. Making a check list of items that will help and determine which items that we have been bringing is a waste of space. Yesterday I got a power strip for both of us so we are not sitting in really weird positions as we are using our electronics. Tomorrow should be interesting for me working a full day from the hospital room.
Thank you for all of the prayers! 

~Ken and Jo~